What is StrivePD?
StrivePD is a HIPAA compliant, trusted iOS app and disease management tool for Parkinson’s care for both patients and clinical care teams. Paired with the Apple Watch and Deep Brain Stimulation (DBS) devices (if applicable), patients are able to track and share their summarized disease experience (e.g. symptoms, medications, activity) with care teams outside the clinic.
How will I benefit from using StrivePD?
StrivePD allows you to understand your disease on a deeper level. You can monitor your symptoms, set medication reminders, and even share your progress with your care team using the app. Providing your neurologist with direct access to daily logs of your symptoms and medication adherence allows them to make appropriate adjustments to your care, and help you improve your well-being.
With your consent, we may share your de-identified brain data with partners that may be able to use the data to identify biomarkers of disease progression, and aid in developing more effective treatments for Parkinson’s and other neurological disorders.
If you would like to learn more about it, don’t hesitate to contact us at email@example.com.
Does StrivePD cost any money to download?
The StrivePD app is available on the Apple App Store for free. There is no subscription required.
I'm an Android user - can I download StrivePD?
Currently, the StrivePD app is only available for Apple iOS users.
Am I required to share my reports or insights with my neurologist?
No - StrivePD enables users to manually log symptoms, track what makes you feel better or worse, set medication reminders, and gain insights about your health from patterns in your day-to-day activities. If you would like to share your insights and reports with your care team to better manage your care, add your name to the waitlist here to join the StrivePD Program.
What is the StrivePD Program waitlist for?
If you are interested in connecting with your neurologist and/or want to use the Apple Watch to help track your Parkinson’s symptoms, you may be eligible for participation in our StrivePD Program. Fill out your contact information, indicate whether you are a patient or caregiver, and which hospitals or medical centers you visit. Once we receive a response, our patient specialists will contact you within 2 weeks. As a reminder, your information will be confidential.
Where is my data going?
Do I need an Apple Watch to download StrivePD?
All individuals, specifically those who have been diagnosed with Parkinson’s Disease or other neurological disorders, are eligible to download the StrivePD app. If you currently do not own an Apple Watch, eligible individuals will be provided with one. The Apple Watch will capture and record symptoms of tremor and dyskinesia, and will integrate that data with the StrivePD app. If interested, add your name to the StrivePD Program waitlist here.
How long do I have to wear the Apple Watch?
We recommend wearing the Apple Watch as long as possible. The watch collects information on sleep, steps/mobility, activity vitals, and symptoms like dyskinesia and tremor, gait, and fall detection, which can be critical in understanding your disease progression. Please note the watch is waterproof and can be worn when sleeping. In case you use your Apple Watch as a medication reminder, we suggest charging your watch at the same time each day. Overall, the watch’s battery should last 18 hours after a full overnight charge.
I am a Parkinson’s Disease caregiver - can I download the app?
We encourage caregivers to use StrivePD. Caregivers have enjoyed using the app both to track medication and symptoms, and to keep detailed notes about their loved ones’ condition, since before its official launch. They’re still using it!
Who is Rune Labs?
StrivePD is a product and solution of Rune Labs. This company is empowering the development of precision medicines for Parkinson's Disease and other neurodegenerative disorders by using its software platform to make brain data useful at scale. Rune Labs partners with academic collaborators to optimize clinical care for patients, and with biopharma and medtech companies to enable the development of targeted treatments for patients with brain diseases. For more information, visit www.runelabs.io.
I am a patient or caregiver - who do I contact if I have any questions?
For questions or concerns about the User Guide or FAQ sections, please contact firstname.lastname@example.org. For information about Rune Labs, please contact us at email@example.com.
For Movement Disorder Specialists
How will my patients benefit from using the StrivePD app?
StrivePD helps streamline the communication between patients and their care team. It reduces the burden on patients to remember all the details of their on and off phases with Parkinson’s. It also allows patients to understand their disease management by empowering them to monitor their symptoms, set medication reminders and share progress with their neurologist or movement disorder specialist. Data from outside clinical visits can add an extra dimension of understanding for clinicians, allowing them to provide better guidance and treatment options for patients.
How will I benefit from using StrivePD's clinician dashboard?
Currently, movement disorder specialists do not have access to high quality data on patients’ symptoms and brain activity. Specialists will be able to see their patients’ lifestyle, symptoms, and brain activity via the StrivePD clinician dashboard outside the clinic. The dashboard automatically synthesizes data from the app, Apple Watch, and DBS devices allowing specialists to provide more precise treatment options and guidance for their patients, at the right time.
What type of data will I be able to see on the dashboard?
The clinician dashboard allows you to view a summary of Medtronic’s Percept brain signals (including beta activity), daily patterns of tremor and dyskinesia, sleep patterns and other Apple Health data (mobility, gait, falls), symptoms, side effects, and medication adherence.
How does it impact my workflow / will I receive any notifications?
The dashboard is a low burden, web-based browser meant to be accessed and examined during patient visits – your very own decision support tool. Specialists do not receive notifications, but are able to see a full summary of their patients’ symptoms since their last in-person visit. This summarized information is critical to tailoring and optimizing an individual’s care, whether it is through suggesting changes in medication schedule or adjusting DBS settings.
I am a movement disorder specialist - who do I contact if I have any questions?
If you are a movement disorder specialist and interested in using StrivePD, please contact us at firstname.lastname@example.org. For questions or concerns about the User Guide for your patients, please contact email@example.com. For information about Rune Labs, please contact us at firstname.lastname@example.org.